GHFEDS Events

    • May 25, 2021
    • (CDT)
    • October 12, 2021
    • (CDT)
    • TBA
    Register

    2021 GHFEDS Step Up For Down Syndrome Walk

    Walk Buttons

    Order due by October 11th 

    Buttons are $3 each in quantities of 5.

     Please send a "Head Shot" photo to Elizabeth Stevens at elpool@earthlink.net

    Buttons can be picked up along with your walk shirt pick up TBA.

    This is an example of the buttons, current year will be added to the buttons.





    • May 25, 2021
    • (CDT)
    • October 11, 2021
    • (CDT)
    • TBA
    Register


    Team Captains will receive 1 free walk sign when your team raises $100 or more. If your team does not raise $100+ or you want extra walk signs you will need to order here, walk signs are $50 each, please send a "Head Shot" photo and Team Name to Elizabeth Stevens at elpool@earthlink.net

    Please order by October 11th!

    This is an example of the walk sign, design may be different for this years walk.






    • May 25, 2021
    • (CDT)
    • October 04, 2021
    • (CDT)
    • Walter Hall Park - 807 Hwy 3 League City 77573
    Register


    If you are interested in volunteering for GHFEDS Step Up for Down Syndrome Walk please register here.


    The walk will be held on October 23rd from 9am - noon at Walter Hall Park in League City.

    We will need volunteers to help from 7am - noon with restocking water and capri-sun's in coolers, restocking snacks, setting up walk signs along walk path, hanging banners, placing fitted table cloths on tables, direct parking, cotton candy machine, popcorn machine, monitor stage, manage registration/volunteer/shirt/prize tables, monitor moonwalks/slides, and clean up.

    Each volunteer will receive a walk shirt and a cinch sack filled with goodies and breakfast.

    Click on each volunteer job for a description and hours needed. Please bring your own volunteer hours form to be signed if needed.

    Please register by October 4th !!

    If you have any questions please contact us at admin@ghfeds.org.

    We greatly appreciate your time to volunteer for GHFEDS Step Up Walk!!


    • July 10, 2021
    • 10:00 AM (CDT)
    • July 31, 2021
    • 12:00 PM (CDT)
    • Main Event - 1125 Magnolia Avenue Webster, TX 77598

    *Registration is closed*

    SUMMER PROGRAM

    Bowling Camp
    Dates: Saturday's - July 10, 17, 24, 31
    Time: 10am-12pm
    Location: Main Event in Webster

    The Bowling Camp is for all ages

    Siblings are welcomed and will be charged $28 per sibling, this fee is non-refundable.

    Includes 1 hour of bowling, $20 FunCard, and 2 slices of pizza and drinks. Parents are on their own for food and drinks.

    **Registration closes July 5th at noon, if you are not able to attend a date please notify us 3 days or more before the event, this is a prepaid event, if you cancel within 3 days of the event or no show you will be charged $7 per person.**

    **You must have a current Annual Membership to register for Summer Programs.**

    • July 11, 2021
    • (CDT)
    • August 15, 2021
    • (CDT)
    • Galveston & Alvin/League City

    **Registration is Full**

    GHFEDS 2022 Calendar

    The GHFEDS 2022 Calendar will be dedicated in memory of Eva Marie House.

    Calendar Rules

    All ages welcomed!

    You must have a current Annual Membership.

    Registration fee is $21 per child and is non-refundable.

    Rescheduling photo shoot will not be permitted, if you can not attend the photo shoot then notify us immediately.

    You must sell a minimum of 3 calendars, calendars are $20 each.

    *Who ever sells the most calendars will be on the Calendar Cover.

    **Calendar sales will close on  September 13th at 9am, the Calendar Cover winner will be announced after closing.

    If you have more than one child with Ds you must register each child separately.

    Photo Shoot Dates

    July 11th - Galveston Streets/Alley's - 6 spots only

    August 15th - Alvin/League City Area - 6 spots only

    You will be contacted by photographer Kerri Liles regarding times and locations.

    Calendars will also be available to purchase during the registration process for the Step Up Walk or at the walk itself, these purchases will not be counted towards the Calendar Cover.

    • July 30, 2021
    • 11:30 AM (CDT)
    • 15019 8th Street Santa Fe Tx 77517
    Register

    Teen Social

    Planting at Jimbo's Nursery in Santa Fe

    July 30th at 1130am

    This social is for Teens with Ds ages 13-20, siblings are welcomed and will be charged $5 per sibling.

    The kids will paint their own pots, will receive 3 plants, participate in a scavenger hunt, and have a picnic lunch with sandwiches, chips, popsicles, and drinks. Gluten Free sandwiches will be available.

    *You must have a current Annual Membership to register for this event.*


    • August 08, 2021
    • 2:00 PM (CDT)
    • 812 East Main Street, League City
    Register

    Adult Social

    Kahuna Joe's Snow Cones
    August 8th at 2pm

    Location: 812 East Main Street in League City

    This social is for adults with Ds ages 18 and up, they will order a snow cone of their choice and hang out and socialize outside while enjoying a cool treat. Parents/Caregivers will be responsible for purchasing their own treat.

    *You must have a current Annual Membership to register for this event.*


    • August 13, 2021
    • 6:30 PM - 8:30 PM (CDT)
    • 607 S Friendswood Dr, Friendswood, Tx 77546
    Register

    Parents Night Out

    Painting with a Twist - Texas Flair

    August 13th from 630-830pm

    Location: 607 S Friendswood Dr in Friendswood

    Get a sitter because it's Parents Night Out, BYOB and snacks, enjoy a night of painting and laughing.

    DEADLINE to register is August 9th at noon.

    *You must have a current Annual Membership to register for this event.*




    • August 14, 2021
    • 2:00 PM (CDT)
    • Zoom Meeting
    Register

    **This is a meeting for GHFEDS members only, Do Not Forward/Share**

    Parent Educational Meeting

    Down Syndrome Disintegrative Disorder/Regression

    Join us for a Zoom meeting with Dr. Jon Santoro, Director of Neuroimmunology at Children's Hospital of Los Angeles and Keck School of Medicine at USC, he will be discussing what is DSDD/Regression, causes and symptoms, tests and treatment.

    August 14th at 2pm.
    Zoom link will be sent on the day of the event.

    Dr. Santoro will answer questions after the presentation.

    Please send your questions to admin@ghfeds.org by August 11th at 9am.

    Registration closes August 11th at 9am.

    *You must have a current Annual Membership to register for this meeting.*


    • August 29, 2021
    • 12:00 PM - 4:00 PM (CDT)
    • Sea Star Base Galveston - 7509 Broadway Galveston, Texas 77554
    Register

    1st Annual Family Sail Away Day at Sea Star Base Galveston

    GHFEDS has been invited to have a annual Family Day at Sea Star Base Galveston.

    August 29th from 12-4pm

    Sea Star Base Galveston
    7509 Broadway in Galveston

    Deadline to register is August 2nd at noon for SSBG to order shirts and prepare for the event!

    Let's end the summer with a family day filled with fun in the sun activities!

    Includes sailing, kayaking, fishing, volleyball, swimming in the pool, and food.

    Food served TBA, you are welcome to bring your own food.

    SSBG is working on getting fishing licenses waived by the TPWD, if they are unable to get them waived then those who are 17 and older will need a fishing license for saltwater fishing, you can purchase a day pass at SSBG, individuals with Ds will not need a license but the parent will need a license.

    The SSBG is located on the bay so you will need to watch your children around the water, GHFEDS/SSBG is not responsible to watch your children.

    SSBG will be giving shirts to the families, please include your shirt sizes during the registration process.

    If you No Show or Cancel after the deadline you will be charged $5 per family to cover costs.

    You must have a current Annual Membership to register for this event.

    • September 17, 2021
    • (CDT)
    • September 19, 2021
    • (CDT)
    • Great Wolf Lodge Grapevine
    Register


    GHFEDS will be offering 2 types of reimbursements for your attendance to the Lumind IDSC Great Wolf Lodge Family Weekend on September 17-19. 

    You must register through Lumind/IDSC for their event, it is not associated with GHFEDS, we will only be reimbursing you for your attendance. Please click on the link for more info and the registration process for the Great Wolf Lodge Family Weekend. IDSC ANNUAL FAMILY WEEKEND  

    After attending the event you will need to email your receipt to us for reimbursement.

    You must have a current Annual Membership to register for the reimbursement.

    Type 1 - reimbursement of $100 for members
    Type 2 - reimbursement of $150 for 2020 Step Up Walk Team Captains who raised $150 or more

    We have limited spots so register soon!

    We hope you and your family enjoy the IDSC Family Weekend!




    We listened to our members' request to host the event at more locations and in 2014 we will host a kick off at ALL the Great Wolf locations! All 1
    Mark your calendars for March 7-9 2014. We hope you can join us!


    Here are the details:

    Rates: $169.00 a night plus tax. {Minimum 2 night stay required}

    Plus $9.99 for resort fees. {these fees cover internet, towels, life jackets and parking} 

    In the United States, the cost of the room WILL INCLUDE 6 water park passes.
    You can make your reservation by calling toll free at 1-800-559-WOLF (9653) by January 20, 2014.

    Identify yourself as a member of the IDSC with the following group codes.

    Wisconsin Dells:1403IDSCME
    Sandusky:1403IDSC
    Traverse City:1403IDSC
    Kansas City:1403INTE
    Williamsburg: 0314INTE
    Cincinnati/Mason: 1403INTE
    Grapevine: 1403IDSC
    Grand Mound:1402INTE
    Charlotte/Concord:1403IDSC

    *Pocono Mountains: First block is filled. They are extending a new block, with a new rate at $279.00 the code for this is 1403INTE.

    The Niagara location WILL INCLUDE 4 water park passes, the hotel will sleep 4 people per room (Max 6). Water park passes can be purchased for $40.00 per room/ per night (maximum 2)
    you can make your reservation for this location by calling the toll free number 1-800-605-9653 by January 20, 2014

    Niagara Falls, ON: 1403IDSCME

    There will be a Pizza Party at all locations on Saturday night. Purchase your tickets by February 25, 2014. Tickets can be purchased here.


    CANCELLATION POLICY: All rooms must be guaranteed by the individual and accompanied by a first night room deposit. Each individual has 72 hours prior to arrival date to cancel the individual room with a $30.00 cancellation fee per room. If the individual cancels the room within 72 hours of the arrival date, 100% of the first night's room rate plus tax will be charged to the individual's credit card or taken from the deposit.

    If you are interested in sponsoring our IDSC Kick Off to World Down Syndrome Day Meet Ups, please click here for more information. 
    - See more at: http://www.theidsc.org/p/this-year-we-celebrated-at-5-great-wolf.html#sthash.4jCNmuSC.dpuf

GHFEDS is a 501(c)(3) non-profit support organization serving the Greater Clear Lake area, including South Houston, Pearland, Pasadena, League City, Galveston, and other surrounding areas.

admin@ghfeds.org

P.O. Box 891093
Houston, TX 77289
281-736-8008
      

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